Welcome! You're not alone.
If your family has been affected by Nephrotic Syndrome, consider Nephrotic Syndrome Support Network your second home.
Got some QUESTIONS?
Check our FAQ PAGE.
Read More from our First-Time-User Guide.
There are no birthdays today
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Nephrotic syndrome is a nonspecific kidney disorder characterised by a number of signs of disease: proteinuria, hypoalbuminemia and edema. It is characterized by an increase in permeability of the capillary walls of the glomerulus leading to the presence of high levels of protein passing from the blood into the urine;low levels of protein in the blood (hypoproteinemia or hypoalbuminemia), ascites and in some cases, edema; high cholesterol (hyperlipidaemia or hyperlipemia) and a predisposition for coagulation.
Kidneys affected by nephrotic syndrome have small pores in the podocytes, large enough to permit proteinuria (and subsequently hypoalbuminemia,<25g/L, because some of the protein albumin has gone from the blood to the urine) but not large enough to allow cells through (hence no haematuria). By contrast, in nephritic syndrome red blood cells pass through the pores, causing haematuria.
Thrilled to announce that Ben's Friends received a $1,500 donation from Sean Vitka and Blue Redefined (http://www.blueredefined.org/), a non profit patient organization. It's incredible to be recognized by…Continue
A few weeks ago, my friend Noga Leviner told me she was building an Electronic Medical Records system for people with rare conditions. It's called PicniceHealth (…Continue
This post was written by Lovett, a Moderator on Fibromyalgia Support. Lovett is one of the 200+ Volunteer Moderators on Ben's Friends Support Communities. Rather than just posting this on the Fibromyalgia site, I thought every community would…Continue
Hi everyone, you'll recall that a couple of months ago, we asked all the Members of Ben's Friends to fill out a short survey about how Ben's Friends helps you. The survey was put together by a prestigious non profit consulting group called …Continue
Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!
Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.