Welcome! You're not alone.
If your family has been affected by Nephrotic Syndrome, consider Nephrotic Syndrome Support Network your second home.
NOW....GET STARTED:
1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
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Read More from our First-Time-User Guide
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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
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Nephrotic Syndrome is a collection of signs and symptoms that occur when glomeruli are damaged.
Most often, Nephrotic Syndrome is defined by its primary diseases that attack the kidney’s filtering system. Doctors often call these diseases "idiopathic," which means that they have arisen without a known cause. These primary diseases include Minimal Change Disease (MCD), Focal Segmental Glomerulosclerosis (FSGS), and Membranous Nephropathy (MN) and are identified by kidney biopsy.
Started by Ben Munoz in General on Monday. 0 Replies 1 Like
For those of you who aren't able to work any more. What do you like to do to fill your time? If you do crafts, what kind of a craft do you do?I'm hoping all of us can share our ideas to help others…Continue
Started by Scott Orn in General May 5. 0 Replies 1 Like
Fantastic story about a young girl getting a transplant organ from her teacher.…Continue
Started by Ben Munoz in General May 4. 0 Replies 0 Likes
All moderators and founders of Ben's Friends work very hard to keep spammers off the site, however their methods of applying for membership get more sophisticated each day. Just on this site, we must…Continue
Started by Ben Munoz in General. Last reply by Tracy Z. Apr 28. 1 Reply 1 Like
Ben's Friends social development work is captured in this awesome Harvard Business Review article …Continue
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How has Ben's Friends impacted your life?Posted by Ben Munoz on March 19, 2013 |
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Phosphorus and Kidney DiseasePosted by Tracy Z. on April 28, 2013 |
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What do you like to do to occupy your time with?Posted by Ben Munoz on May 20, 2013 |
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Everyone please read, as we are having a problem with spammersPosted by Ben Munoz on May 4, 2013 |
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Ben's Friends Co-Founder Scott Orn Featured on Thoughtbot PodcastAdded by Armando A on April 22, 2013 |
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
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Posted by Ben Munoz on April 27, 2013 at 8:43pm 0 Comments 0 Likes
Finding a new doctor can be difficult, and very scary. Being prepared can make the whole experience much easier on you, and on the new doctor. Remember that the doctor works for YOU, and if you are uncomfortable, then you are free to keep searching for someone else. The best doctors are ones that spend time with you, listen to your concerns and take them seriously, and be willing to work with you to find the treatment that is best for you. If you find…
ContinuePosted by Ben Munoz on April 26, 2013 at 11:08am 0 Comments 0 Likes
Dear Nephrotic Syndrome Support Family and Friends,
Our prayers go to those affected by the Boston Marathon bombing. We also hope that none of our members were directly affected by it in any way.
Those who have listened to Scott’s interview on Thoughbot would have realized by now how important your personal participation and activity in our site is. This is a site built for you: it is yours.
It kind of reminds me of…
Continue
Posted by Armando A on April 22, 2013 at 6:00pm 0 Comments 1 Like
"A lot of people (members) don't know what Ben's Friends is. They just know... their community... and it's really awesome!...…
Continue Posted by Armando A on April 19, 2013 at 12:09am 0 Comments 0 Likes
Coping with a rare condition stretches our resiliency and, with a little help from friends, triumph through adversity.
The story of Ben's Friends founder Ben Munoz proves just that. Recovering from a stroke brought about by a cerebral arterioveous malfomation in 2006, Ben started a rare disease community to connect with others and before you know it, that network has grown to 34…
© 2013 Created by Ben Munoz.
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